PHA is an organization that includes the families and friends of the residents of Sonoma Developmental Center (SDC). Our primary focus is the safety and well being of SDC’s residents. We support three guiding principles: Transparency, Open Communication, and Options for California’s developmentally disabled citizens. We also continue to support the Sonoma Developmental Center as one option for a select group of vulnerable disabled and we continue to believe in the care given to our loved ones residing at SDC.
Recently there has been a series of news articles that portray Sonoma Developmental Center and the care there in a negative context. While we welcome oversight, including the coverage on issues by the news media, we are concerned that some of these articles and stories contain inaccurate information and do not fairly portray SDC, its staff and residents. We also are concerned that in recent months there has been a decline in the care of SDC residents. In reviewing the hundreds of pages from the recent licensing survey of the behavioral residents at SDC, a common thread appears - reductions in staffing have led to staffing shortages that have directly or indirectly contributed to many of the concerns cited in the licensing survey. In one article by Cal Watch, Terri Delgadillo, Director of the Department of Developmental Services, stated that she “recognizes the actions necessary to ensure the health and safety of the residents of Sonoma Developmental Center”. She goes on to talk about how she has replaced executive staff. Such actions are insufficient. The truth is that SDC has a history of staff shortages. The shortages have been compounded by salaries that are noncompetitive with salaries at other mental health and correctional facility in the state. They have been further impacted by furloughs and long standing hiring freezes. The DDS response to these shortages is to reduce allocations for line of care staff and other licensed positions. Even with these reduced standards overtime has been a continuing issue at SDC with line of care staff being subject to mandatory holds (overtime). It is the role of DDS to oversee the developmental centers and ensure the care and safety of the residents. We recognize that the staff at SDC and DDS has worked hard on plans to improve the care at SDC, and we commend their efforts. However, even in light of the recent licensing survey DDS is trying to once again reduce staffing standards in a behavioral unit. The most recent survey was no doubt influenced by the recent media reports and, in fact, cited the highly publicized incidents in their report. Importantly, we want to point out that SDC has not, in fact, lost their certification for behavioral residents, despite the recent licensing survey.
Further, the recent licensing survey for the nursing residents found no conditions out of compliance. The news articles on the licensing survey were incorrect in stating that SDC was the only developmental center in danger of losing certification. In fact, Porterville Developmental Center has no current certification for many of its residents. While SDC has lost certification in the past, as have other developmental centers, they have successfully regained it when plans of correction were put into place. It is the job of the licensing staff to identify deficiencies and to seek improvements in the system. We must be careful not to allow the media to misstate or sensationalize a process that is an inherent and necessary part of the system. A sister paper to Cal Watch, the Bay Citizen recently issued a story entitled “14 California Hospitals Fined for Dangerous Mistakes.” It is not at all uncommon for Licensing to find conditions out of compliance in many of their surveys. Sometimes when you go in with a hammer, you are going to find a nail. This is the process that allows for growth and improvement in the care at the centers and in other health care settings.
We also feel it is important to shed the light not just on the potential for abuse at the developmental centers, but elsewhere in our service system. It is a sad fact that, despite hiring practices that attempt to exclude those who might do harm, a few bad apples get through. The hiring practices at SDC match or exceed those for community homes in their scrutiny of potential employees. The reporting practices and procedures at SDC exceed those in place in any other setting. The abuse at SDC was discovered because alert staff reported it. Families of SDC residents have concerns that in isolated community homes where sometimes only two individuals may be working at a time, and those may be friends or family members, reporting may actually be less likely to occur. The truth is there is often no way to know what goes on in some community homes. The Department of Health works hard to oversee some community homes, but many are solely licensed by through the Department of Social Services (DSS). Some community homes may not receive a visit from DSS staff even once a year! We feel there is room for improvement in the oversight of many community homes. We are grateful for the intense scrutiny that takes place at SDC and feel that as much as possible, it ought to be duplicated in community homes as well. Finally we are concerned that there is little transparency about what happens to developmental center residents who are placed into alternative homes outside the center. We requested data from the DDS on behavioral clients who have left the centers in the past few years to see how many were forced out of their alternative homes and ended up in acute psychiatric settings or even jail. At first we were provided information indicating that there were no such instances. When we challenged that information, we were told by DDS that they did not have access to that data. When we sent a Public Records Act request to get information on the incidents of deaths during the transition and closures of Agnews and Lanterman Developmental Centers residents, we were, and continue to be, largely ignored. This, despite the fact that the closure laws themselves called for analysis and reporting on the impacts of these closures. How can we trust that alternative placements will live up to the needs of our loved ones when we cannot know the results for those who have already been displaced from the centers? We have been told many anecdotal success stories, but these are enough. We need the facts!
For the reasons listed above, and many more that include our own personal stories, we continue to believe in the care SDC provides for our loved ones and pray that it continues to remain an option. Refine it, improve it, even restructure it, but do not let us lose it. There simply is no replacement that has worked for our loved ones who call it home.
We hope you will continue to support the PHA family group at Sonoma DC in our efforts to improve the center and increase transparency and communication. We also hope you will consider additional oversight for community care homes.
Sincerely,
President Kathleen Miller and the PHA Board of Directors
cc: Legislative offices and committees, Department of Developmental Services, North Bay RC, East Bay RC, Golden Gate RC, San Andreas RC, The ARC, CDCAN, VOR, Sonoma News, Kenwood Press, California Watch News, Lanterman, Fairview, and Porterville families
---
To download and print a copy of this letter, click here. (pdf)
Tuesday, September 18, 2012
Thursday, September 13, 2012
News updates for the week of Sept. 10th
:: Reforms for Office of Protective Services go to the governor
According to a news report by California Watch earlier this month, two bills that would require outside law enforcement and advocates to be informed about alleged crimes against the residents of California’s developmental centers have reached Gov. Jerry Brown’s desk.
:: Comment period on Lanterman Center closure timeline ends September 14
A recent California Disability Community Action Network (CDCAN) report provided an update on the Lanterman Center closure.
Tomorrow -- September 14, 2012 -- is the last day to submit written comments or questions on the issue of establishing milestones in the closure of Lanterman Developmental Center. You can read CDCAN report here: CDCAN REPORT #150-2012.
Individuals and organizations can provide comments on this issue – or ask questions regarding this specific issue by sending to the addresses below.
:: Special Needs hotline in the works after South Bay tragedy
After hearing about an overwhelmed mother who killed her son and herself, concerned parents are creating a hotline for families of those with disabilities to turn to in times of need.
Nearly 80 parents of kids and adults with developmental disabilities are on board to volunteer for the new hotline that’s expected to serve the greater San Jose, Calif. area.
:: SCOE classes to continue for residents of SDC
There was some good news reported at last Saturday's general membership meeting. Although the State eliminated most funding for the Sonoma County Office of Education in the recent budget, the Center and DDS have stepped in with funding and classes for residents of Sonoma Developmental Center will continue.
According to a news report by California Watch earlier this month, two bills that would require outside law enforcement and advocates to be informed about alleged crimes against the residents of California’s developmental centers have reached Gov. Jerry Brown’s desk.
Brown has 30 days to sign the legislation – SB 1051 and SB 1522 – into law or veto the measures. Both bills are designated urgent, so they will take effect immediately if the governor approves them.
A recent California Disability Community Action Network (CDCAN) report provided an update on the Lanterman Center closure.
Tomorrow -- September 14, 2012 -- is the last day to submit written comments or questions on the issue of establishing milestones in the closure of Lanterman Developmental Center. You can read CDCAN report here: CDCAN REPORT #150-2012.
Individuals and organizations can provide comments on this issue – or ask questions regarding this specific issue by sending to the addresses below.
DEADLINE TO SUBMIT WRITTEN COMMENTS: September 14, 2012 – Friday
WHERE TO SEND COMMENTS – BY EMAIL: Send email with comments (or
questions) to John Schmidt, Department of Developmental Services at john.schmidt@dds.ca.gov
WHERE TO SEND COMMENTS – BY US MAIL:
Send written comments by US Mail (or other similar delivery) to:
Department of Developmental Services
Attention: John Schmidt
1600 9th Street, Room 240, M.S. 2-13
Sacramento, CA 98814
QUESTIONS OR CONCERNS:
Contact John Schmidt
at the Department of Developmental Services at 916-654-1902 or the
email address above.
After hearing about an overwhelmed mother who killed her son and herself, concerned parents are creating a hotline for families of those with disabilities to turn to in times of need.
Nearly 80 parents of kids and adults with developmental disabilities are on board to volunteer for the new hotline that’s expected to serve the greater San Jose, Calif. area.
There was some good news reported at last Saturday's general membership meeting. Although the State eliminated most funding for the Sonoma County Office of Education in the recent budget, the Center and DDS have stepped in with funding and classes for residents of Sonoma Developmental Center will continue.
Wednesday, August 29, 2012
Families Devastated Over Judah Closure
UPDATE (9/18/12): Fair Hearing Process Cut Short
---
PHA received news that Judah will be closing in the near future. Judah is a unique unit for male only behavior residents. Many of those residents have called Judah home for years and have forged relationships with staff and peers.They are one of Sonma's most vulnerable populations.
The closure of Judah at this time is puzzling for a number of reasons. Cochran, another behavior unit has only 11 residents. Of those 11, four are planning moves to community homes leaving only seven Cochran residents. Judah has 21 residents.
One reason some families were given is possible PTSD syndrome for Judah residents from the well publicized taser incident that took place one year ago. However other non Judah residents were also involved and this suggests that taser incidents occured off unit at the worksite. Clearly this explanation makes no sense. Further, members of PHA received assurance that Judah staff had been moved to break up any groups who "should have known" and reported abuse.
It is possible that the closure is for political reasons. Perhaps the publicity was an issue. Perhaps the closure was included in the Plans of Correction. Whatever the reason it is not one based on the needs of the residents. It appears Judah residents are to be subjected to further trauma.
---
The following letter from Sue Donaldson, a parent of a Judah resident, was recently sent to Karen Clark, Executive Director of Sonoma Developmental Center. We reprint it here with Sue's permission.
August 26, 2012
Karen Clark, Executive Director
Sonoma Developmental Center
P. O. Box 1493
Eldridge, CA 95431
Dear Karen:
I appreciate you meeting with me last Friday and sharing some information regarding the closure of Judah which was/is my main concern. However, after much thought, I do not believe that PTSD (Post-Traumatic Stress Disorder) as a reason makes sense; neither does the haste (by November 1) in which the closure is being conducted. Further, I did not hear a comprehensive plan for the closure; I also wonder why there seems to be a shroud of secrecy.
First, taser victims were from units other than Judah and understand the work site was also involved. Why is Judah the victim? Dale has been on several visits with his parents in Santa Rosa and sister in Point Arena since we were informed in late September 2011 that he was one of twelve taser victims. Also, there has been three JUFSG (Judah Unit Family Support Group) parties/luncheons. There was no notable difference in Dales or other Judah residents behavior. I believe with all my heart and soul that closing Judah will be much more traumatic than the long ago taser event. Not only will the men be taken from their home of many years, they will be separated from their friends. Judah has been Dales home for thirty years. The way I see it, the taser victims will once again be victims and more likely to exhibit PTSD and the return of resolved behavior problems.
In addition, the Judah closure will impact residents on other units; I understand the men will be relocated to at least three other units in program 4. In turn, some residents on these units will be moved to units in other programs. The rush to close Judah makes me strongly feel that Dale and all the other residents involved are being treated like merchandise instead of human beings. I was notified of the November 1 closure August 17. The more recent closures of units has been announced publicly several months in advance along with comprehensive plans.
[According to my parent/family group newsletter archives, the projected move from Paxton to renovated Judah was July 1982; this move was well planned and family members were informed of the move several months in advance. The groups first meeting/event at Judah was a BBQ August 29, 1982.]
I firmly believe that the closure of Judah is not in the best interest of all residents involved and hope the closure will be reconsidered; at least set the date of closure past the holidays.
Sincerely,
Sue A. Donaldson
cc PHA board; JUFSG
The last few days I have learned that moving the men from Judah has continued, seemingly at full speed. Only Dale’s move has been put on hold. From the bits and pieces I’ve been able to learn, I think Dale’s friends have already been moved or will be moved this coming week.
After much thought, in brief, I have come to the conclusion that the Fair Hearing process is or will be more upsetting for Dale than the move to another unit. Therefore, tomorrow I will take whatever steps necessary to withdraw the request for a Fair Hearing.
At least I've learned two facts: 1) “Fair Hearing” is anything but fair. 2) What I thought was my legal right as a conservator to be duly informed has been/is being totally ignored. (At Dale’s semi-annual IPP June 21, 2012 absolutely nothing was mentioned regarding the closure of Judah or moving Dale to another unit.)
Thanks to all for your support, Sue Donaldson.
After much thought, in brief, I have come to the conclusion that the Fair Hearing process is or will be more upsetting for Dale than the move to another unit. Therefore, tomorrow I will take whatever steps necessary to withdraw the request for a Fair Hearing.
At least I've learned two facts: 1) “Fair Hearing” is anything but fair. 2) What I thought was my legal right as a conservator to be duly informed has been/is being totally ignored. (At Dale’s semi-annual IPP June 21, 2012 absolutely nothing was mentioned regarding the closure of Judah or moving Dale to another unit.)
Thanks to all for your support, Sue Donaldson.
PHA received news that Judah will be closing in the near future. Judah is a unique unit for male only behavior residents. Many of those residents have called Judah home for years and have forged relationships with staff and peers.They are one of Sonma's most vulnerable populations.
The closure of Judah at this time is puzzling for a number of reasons. Cochran, another behavior unit has only 11 residents. Of those 11, four are planning moves to community homes leaving only seven Cochran residents. Judah has 21 residents.
One reason some families were given is possible PTSD syndrome for Judah residents from the well publicized taser incident that took place one year ago. However other non Judah residents were also involved and this suggests that taser incidents occured off unit at the worksite. Clearly this explanation makes no sense. Further, members of PHA received assurance that Judah staff had been moved to break up any groups who "should have known" and reported abuse.
It is possible that the closure is for political reasons. Perhaps the publicity was an issue. Perhaps the closure was included in the Plans of Correction. Whatever the reason it is not one based on the needs of the residents. It appears Judah residents are to be subjected to further trauma.
---
The following letter from Sue Donaldson, a parent of a Judah resident, was recently sent to Karen Clark, Executive Director of Sonoma Developmental Center. We reprint it here with Sue's permission.
August 26, 2012
Karen Clark, Executive Director
Sonoma Developmental Center
P. O. Box 1493
Eldridge, CA 95431
Dear Karen:
I appreciate you meeting with me last Friday and sharing some information regarding the closure of Judah which was/is my main concern. However, after much thought, I do not believe that PTSD (Post-Traumatic Stress Disorder) as a reason makes sense; neither does the haste (by November 1) in which the closure is being conducted. Further, I did not hear a comprehensive plan for the closure; I also wonder why there seems to be a shroud of secrecy.
First, taser victims were from units other than Judah and understand the work site was also involved. Why is Judah the victim? Dale has been on several visits with his parents in Santa Rosa and sister in Point Arena since we were informed in late September 2011 that he was one of twelve taser victims. Also, there has been three JUFSG (Judah Unit Family Support Group) parties/luncheons. There was no notable difference in Dales or other Judah residents behavior. I believe with all my heart and soul that closing Judah will be much more traumatic than the long ago taser event. Not only will the men be taken from their home of many years, they will be separated from their friends. Judah has been Dales home for thirty years. The way I see it, the taser victims will once again be victims and more likely to exhibit PTSD and the return of resolved behavior problems.
In addition, the Judah closure will impact residents on other units; I understand the men will be relocated to at least three other units in program 4. In turn, some residents on these units will be moved to units in other programs. The rush to close Judah makes me strongly feel that Dale and all the other residents involved are being treated like merchandise instead of human beings. I was notified of the November 1 closure August 17. The more recent closures of units has been announced publicly several months in advance along with comprehensive plans.
[According to my parent/family group newsletter archives, the projected move from Paxton to renovated Judah was July 1982; this move was well planned and family members were informed of the move several months in advance. The groups first meeting/event at Judah was a BBQ August 29, 1982.]
I firmly believe that the closure of Judah is not in the best interest of all residents involved and hope the closure will be reconsidered; at least set the date of closure past the holidays.
Sincerely,
Sue A. Donaldson
cc PHA board; JUFSG
Thursday, August 23, 2012
PHA President's message (video)
Earlier this month PHA President Kathleen Miller posted a statement about recent reports of abuse at Sonoma Developmental Center. (see: PHA President's statement on reports of abuse at SDC, Aug. 3, 2012.) Since then, news coverage of incidents of lapses in care at SDC and the management of the state's developmental centers has continued.
Kathleen has prepared the following video message to address questions and concerns over the most recent coverage:
Questions on Abuse Case vlog 2b aug '12 from Scott Pearson on Vimeo.
Kathleen has prepared the following video message to address questions and concerns over the most recent coverage:
Questions on Abuse Case vlog 2b aug '12 from Scott Pearson on Vimeo.
Update on recent licensing survey at Sonoma Developmental Center (video message)
At the end of May an extensive licensing survey began at Sonoma Developmental Center (SDC). PHA President Kathleen Miller touched on it in an earlier video message. (see: Video message from PHA President Kathleen Miller, July 4, 2012, on this blog)
The survey concluded on July 3, and in this video Kathleen updates us on some of the results of the review, along with some comments.
Licensing Questions vlog2a Aug '12 on Vimeo.
The survey concluded on July 3, and in this video Kathleen updates us on some of the results of the review, along with some comments.
Licensing Questions vlog2a Aug '12 on Vimeo.
Subscribe to:
Posts (Atom)
