Wednesday, April 11, 2012

Long waiting lists for community placement one ripple effect of center closures

photo credit: Sol S. on flickr.com
In Connecticut a developmentally disabled person interested in placement in a group home in the community could wait years for a spot. The waiting lists are that long. As one commentator has pointed out, the problem seems to be exacerbated by the closure of developmental centers and other facilities.

Originally appearing in The Harford Courant, the editorial below was recirculated in the most recent Weekly News Update from VOR. We're reposting it because it is also a looming concern here in California as we continue to lose the resources housed in our DCs.

(Read to the end of this posting to find more commentary by the same author on this important issue.)

from The Hartford Courant (Commentary), April 1, 2012
About the author: David Kassel of Harvard, Mass., is communications director of the SouthburyTraining School Home and School Association.

Stan and Kathy Peters of Killingworth are facing the daunting task of finding a residential placement for their grown daughter, Sarah, 28, who is intellectually disabled.

The Peters would like to retire to Florida. Sarah, who now lives at home, would like her independence. But there is a waiting list in Connecticut for placements in group homes, and the wait can be years.

We have a suggestion that we believe would be a win for everyone. Instead of closing the Southbury Training School, as we believe the Malloy administration is now moving at full speed to do, the facility should be opened for the first time in more than 25 years to new admissions.

Southbury would probably not be the right place for Sarah, who is clearly much higher functioning than the average resident there. But it would be right for many people who are ahead of her right now on the waiting list for group homes.

Reversing course and opening Southbury would shorten the time that Sarah and her family would have to spend waiting for a residential placement to open up. It would immediately make a large and well-run residential facility with cottages and a beautiful campus available to people throughout the state who have been waiting for such an opportunity. To that extent, it would help solve the waiting list problem in general in Connecticut.

Secondly, opening Southbury would help reduce the cost of care per resident, which has risen steadily because the center has been closed to new admissions since the mid 1980s. Because of the lack of new admissions, the fixed costs of operating the center have been spread over a steadily shrinking base of residents.

Unfortunately, the Malloy administration is heading in the opposite direction. It is turning its back on Southbury and its residents and families and is ignoring the vast effort and hundreds of millions of dollars that have gone into improving the facility in the past two decades, bringing it to world-class status.

Southbury today is closely integrated with its surrounding community, meets strict federal standards of care and remains the best setting available in the state for the long-term well-being of its residents, according to the vast majority of the families and guardians there.

The Department of Developmental Services, however, is using the 2010 Messier v. Southbury Training School federal court settlement as a basis for emptying the center of its remaining residents by transferring them into community group homes as quickly as possible. The Messier settlement, which was reached without the input or approval of the families and guardians at Southbury, is based on outdated presumptions about the care provided at this institution.

While administration officials will not admit publicly that they are moving to shut down Southbury, internal DDS documents, obtained under Freedom of Information Act requests, project the virtual closure of the facility in six to nine years. Meanwhile, as community residences are developed or found for each of the more than 400 remaining residents at Southbury, what does this mean for Sarah Peters and the hundreds of other people waiting with her for residential placements? It means adding more years to the already unacceptable waiting time they are currently being forced to endure.

Connecticut has a serious problem in providing services and places to live for people with intellectual disabilities. Now is the time to explore every avenue to solve that problem, to re-examine long-held presumptions, and to step outside of rigid ideologies. It is not the time for business-as-usual approaches that are opposed by the families and guardians at Southbury and that will only worsen conditions for Sarah Peters and her peers in the DDS system.

Related post by David Kassel:
Why we’re concerned about the Connecticut DDS waiting list

As we note in our op-ed article in The Hartford Courant, allowing new residents into STS would do something real to help solve the waiting list problem by making existing cottages on the campus available to people with severe and profound levels of disability in the state who are waiting for residential services.  This would in turn open up opportunities for community-based residential placements for higher functioning people such as Sarah Peters of Killingworth who is currently facing a wait that could be years for such an opportunity.

Why the apparent rush to close STS and potentially make the waiting list problem worse? We think part of the answer lies in an anti-institutional and anti-governmental ideology, promoted by organizations like the Arc of Connecticut.  This ideology has given rise to court battles here and in other states to close state developmental centers.  But as noted above, there may be more going on here.   In Connecticut, the Malloy administration is also talking about reducing state funding for all residential services for the intellectually disabled, both public and private.

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Read more on The STS blog,
or click here to download VOR's April 6, 2012 Weekly News Update.

Wednesday, April 4, 2012

Budget news from Sacramento

Photo: Seyllou/AFP/Getty Images in
One billion people disabled, first global report finds on guardian.co.uk

VHIconnect recently posted a couple of budget and funding updates of interest to the developmental disability community -- and it's not all bad news.

In one post, they've reported that California’s Department of Developmental Services (DDS) has released its plan, as requested by the Governor’s December budget proposal, to cut $200 million ($100 million from General Fund) in expenditures in 2012/2013 ($100 million as required by the activation of “trigger cuts”, due to a revenue shortfall). (from DDS Releases Plan for $100 Mil in Savings)

The good news here is that the $100 million cost reduction will be achieved, according to the DDS plan, without having to make additional cuts to programs or services but through higher than expected savings from various existing measures already in place, and through an increase in federal matching funds.

DDS held a number of stakeholder workgroup meetings to provide input on where and how the proposed cuts/savings could be implemented. Senate Bill 73 directed the Department of Developmental Services (DDS) to consider a variety of strategies including savings attributable to caseload and expenditure adjustments, unexpended savings in contract budgets, and other administrative savings to meet this target.

In a related news item, VHIconnect posted that the Legislative Analysts Office (LAO) has issued a report titled “An Overview of DDS Programs and Recent Funding and Caseload Trends” which offers a summary of General Fund allocations to DDS developmental center and community based services. The report states that DDS spending has remained relatively flat over the past three years, although the report does not include costs such as In Home Supported Services (IHSS). The report credits the reduction in expenditures to “adoption of various savings measures that have offset growth in costs due to caseload and utilization of services”. (from DDS Updates Legislature on 2010 CA Auditor Findings)

See the VHI website for more details -- or read the full twelve-page report, which can be found on the LAO website at www.lao.ca.gov.

Despite these indications that DDS is holding the line on cutbacks, the vulnerability of funding for and continuation of services to the developmentally disabled community does continue to be a concern as the budget crunch continues in California.

Earlier this year, The Arc of California posted a report issued by the KTLP (Keep the Lanterman Promise) group on the results of a survey to providers that shows funding of many programs and services for community-based folks is at risk. (see In Danger of Collapse) As developmental centers continue to be downsized and closed and the disabled are dispersed to community-based care systems, it is important to ensure that support is maintained.

Thursday, March 22, 2012

News from Virginia: Department of Justice defends Va. institutions settlement

A report this week out of Virginia in the online edition of The News Leader will be of interest to anyone following changes involving developmental centers, regional centers and group care for the developmentally disabled here in California.

from the article...

An agreement reached between the U.S. Department of Justice and Virginia over the state's care of people with intellectual disabilities does not require the closure of state institutions, federal attorneys argue in a court brief filed Friday.

Federal civil rights attorneys submitted the brief in opposition to a challenge on behalf of 13 families and guardians who have said their relatives are being well-cared for in the state's large institutions and closing them would be detrimental to their well-being.

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Department of Justice defends Va. institutions settlement, by Maria Longley, 3/20/2012, The News Leader

Correction to misquote in The Kenwood Press story on PHA March meeting

The March 10th legislative meeting was full to over flowing with concerned family and friends of Sonoma Developmental Center (SDC) residents. Jay Gamel wrote a story in the local Kenwood Press around the discussions that took place at the meeting. As usual Jay did a great job but there were a couple of misquotes that I would like to correct.

Budget cuts have happened along with down sizing at SDC but they have not resulted in “less expensive care givers” but in less care givers. When a staff person elects to leave or retire he or she is simply not replaced. Those care givers who do remain at SDC are doubly appreciated for the hard work and long hours they put in as professionals caring for our loved ones.

Kathleen Miller, PHA President

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Legislators hear SDC concerns, by Jay Gamel, in The Kenwood Press

Monday, March 19, 2012

High turnout for annual PHA 'Meet Your Legislators' meeting

It was standing room only at the Parent Hospital Association's March 10th general membership meeting when PHA hosted its annual legislative agenda. This yearly meeting is always an important opportunity for members and others in the SDC community to meet elected representatives and their staff, ask questions and voice concerns about the center.

In attendance this year were representatives from the offices of Mark Leno, Wes Chesbro, Noreen Evans, Jared Huffman and Michael Allen. Patricia Flannery also attended on behalf of the Department of Developmental Services in Sacramento.

Unfortunately, due to the high turnout and the number of people who wanted to speak, not everyone had a chance to make their statements or ask questions of the legislators' aides in attendance. A few people passed on their written letters or statements to PHA and have agreed to have them posted. We have posted three to date and you can find them here: Public Comments to Elected Representatives. More will be added as they become available.

Watch for a full report of the meeting in the next issue of The Eldridge Gazette, which will be mailed to members sometime in April. (You can also download issues of the Gazette here on the blog or from the Resources page on the main website. The next issue will be posted in mid-April.)

A reporter from The Kenwood Press attended the meeting. You can read his take on the proceedings here: Legislators hear SDC concerns, by Jay Gamel.
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