Monday, December 24, 2012

VOR Statement on Sandy Hook

"This must end":
Disability Policy & Mental Health Reform NOW

VOR joins the chorus of heartfelt sympathy expressed for the families and friends of the victims of the Sandy Hook tragedy.

With so much “politics” (you name the issue) dividing our country, VOR prays that this tragedy finally unites parents, families, advocates, professionals, organizations, and policymakers in a way never before experienced.

There can be no real justice for the senseless killings in Connecticut and elsewhere, but uniting as a nation will get as close to healing as possible and will help prevent such senseless tragedy in the future.

As the President stated,
“’We can't tolerate this anymore,’ he added. ‘These tragedies must end, and to end them, we must change. We will be told that the causes of such violence are complex, and it is true. No single law, no set of laws can eliminate evil from the world or prevent every senseless act of violence in our society. But that can't be an excuse for inaction. Surely we can do better than this.’”

VOR agrees and central to necessary change is disability policy and mental health reform. Too many people who need help have nowhere to go, are turned away, are displaced from specialized care, or are not adequately treated and monitored. Patient’s rights have trumped almost completely safety – to self and others -- in the name of "deinstitutionalization" and "integration." As stated by the Treatment Advocacy Center (TAC) (Dec. 14, 2012): 

“‘Our mental health system has completely failed individuals with severe mental illness and their communities,’ said Doris A. Fuller, [TAC] executive director. ‘We have emptied the nation's hospitals, gutted state and local mental health programs, and turned involuntary treatment into a debate point instead of using it as a viable option to prevent tragedy involving those too ill to help themselves.’”

The Washington Post  (Dec. 17, 2012), also quoting TAC added - 
“By treating the rest in the least-restrictive settings possible, the thinking went [in 1963], we would protect the civil liberties of the mentally ill and hasten their recoveries . . . But in the decades since, the sickest patients have begun turning up in jails and homeless shelters with a frequency that mirrors that of the late 1800s. ‘We’re protecting civil liberties at the expense of health and safety,’ says Doris A. Fuller, the executive director of the Treatment Advocacy Center, a nonprofit group that lobbies for broader involuntary commitment standards. ‘Deinstitutionalization has gone way too far.’” (emphasis added).

A mother of a young man with serious mental illness agreed, writing this in her blog: 
“With state-run treatment centers and hospitals shuttered, prison is now the last resort for the mentally ill—Rikers Island, the LA County Jail, and Cook County Jail in Illinois housed the nation’s largest treatment centers in 2011”
“We can’t tolerate this anymore”

For 30 years, VOR has been calling on Congress to support specialized treatment options for people with profound intellectual and developmental disabilities.
Decades of deinstitutionalization has resulted in the depletion of an adequate safety net for people who need our help.

Tragedies will continue to befall people with I/DD, children, adults, and citizens if our laws and policies continue to support deinstitutionalization, depriving people with disabilities of needed specialized, residential care and treatment.

This concern is a real and present one. Just last month (Nov. 2012), the National Council on Disability, an independent federal agency, released a 300 page policy document and toolkit recklessly calling for the closure of all specialized homes of four or more residents for people with disabilities. For several years, the U.S. Department of Justice’s Civil Rights Division has pursued more than 30 legal actions which at their core aim to displace individuals from specialize care options. In 2010, the Justice Department and the State of Georgia entered a federal settlement agreement which will displace 9,000 people with mental illness from psychiatric facilities by 2015; and nearly 1,000 people with I/DD by 2015.

VOR urges the President to use “whatever power this office holds,” to address senseless tragedies with meaningful disability policy and mental health reform and re-think the purported virtues of “deinstitutionalization,” beginning with the actions of his own federal agencies.

“This must end.”

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To view this message from VOR in its original form with associated links to supporting documents, click on this link.

Also, if you are not already a current VOR member, Mary O'Riordan urges PHA members and supporters to join VOR in speaking out for people with disabilities at the national level.

Wednesday, December 19, 2012

Roundup of News on SDC Licensing Woes

There has been a flurry of news coverage surrounding Sonoma Developmental Center (SDC) over the past few weeks beginning with a new report from California Watch on client safety at the state developental centers. PHA President Kathleen Miller responed to the Cal Watch report with an op-ed piece in the Sonoma Index-Tribune. (See: A broader perspective on abuse at SDC.)

These articles were followed by the announcement that federal licensing has given notice that they will go forward with proceedings to terminate certification of the Intermediate Care Facility (ICF) side of SDC, and that the California Department of Public Health will go forward with proceedings to terminate the license for SDC's ICF. (The ICF is the behavioral units at SDC.)

News outlets around the Bay Area picked up the stories. Below is a selection:

State seeks to close care unit in Sonoma Developmental Center over abuse
KTVU San Francisco
The California Department of Public Health said Wednesday it is taking enforcement action against the Sonoma Developmental Center where there were allegations of physical abuse of 12 patients last year. The CDPH said it is moving to revoke the license ...

Abuse reports spark overhaul at Sonoma Developmental Center
Santa Rosa Press Democrat
California public health officials on Wednesday announced that they have decertified an intermediate care facility at the Sonoma Developmental Center in Eldridge in the Sonoma Valley in response to patients being harmed. The agency said it was taking ...

State Threatens to Shut Down Disability Center Amid Patient Abuse ...
KQED News Staff and Wires
State regulators cited the Sonoma Developmental Center, which houses more than 500 patients, for dozens of caseswhere patients were put at risk of injury or death. In issuing the citations, the state moved to shut down a major portion of the ...

CDPH Takes Enforcement Action Against Sonoma Developmental ...
The California Department of Public Health (CDPH) today took enforcement action against Sonoma Developmental Center's Intermediate Care Facility. Date: 12/12/2012.

Sonoma Developmental Center - Disability Rights California
Disability Rights California troubled by Sonoma Developmental Center's loss of federal funds for care of 290 residents; urges support for their move to ...

Assemblymember Marc Levine Comments on Today's Enforcement ...
... today's significant action by the California Department of Public Health to protect the health and safety of residents at the Sonoma Developmental Center.

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For continuing updates on developments at Sonoma Developmental Center, check the PHA website and blog, watch for the next edition of The Eldridge Gazette, or consider attending the next general membership meeting on January 12th.

Caring for the Disabled - as Old as Humanity

Man Bac archaeoloy site, Vietnam
(NY Times)
It's the Season of Caring, when sentiments turn towards thankfulness for what we have and generosity towards others.

Unfortunately, this year the season has been tainted somewhat by concerns over the status and funding of Sonoma Developmental Center, and the tragic news from Connecticut -- news that may make us doubt the existence of that caring and magnanimous spirit in our society and fellow humans.

An article in the New York Times this week offers a bright reminder, however, that we humans do have it in us to selflessly care for the disabled and support the caregivers among us -- and have for a long, long time. (See: Ancient Bones That Tell a Story of Compassion in the New York Times.)

The article reports on the findings of an archaelogical investigation that uncovered evidence of a group of people living 4,000 years ago in Vietnam who cared for one completely disabled member of their group for many years. It's a fascinating story.

The culture of the group was what we would consider 'Stone Age', and the disabilities of the young man were significant. According to the article, he became paralyzed from the waist down before adolescence as a result of a congenital disease and "had little, if any, use of his arms and could not have fed himself or kept himself clean. But he lived another 10 years or so."

Our material culture has changed a lot over the past few thousand years. It seems it should be easier now for us as a group to support those who may not be able to support themselves -- or even contribute to the group. You could even say to do so is only human.

Thursday, December 6, 2012

Call to Renew Your VOR Membership

The following is an open letter from Mary O'Riordan -- Member and Past President of PHA and VOR Development Committee Member -- urging PHA supporters to renew their VOR membership (or become a member if you haven't already).


Dear Members and Friends:

Happy Holidays to all and best wishes for a joyful 2013. I haven’t been in touch for a while and due to health issues I have not been able to attend the PHA meetings. However, I do keep up with important issues, including what is happening on the national level and the importance of supporting VOR, our national advocacy organization.

We all need to be aware that VOR is the only national organization that is in support of family decision-making rights and a full continuum of care options. During the last 30 years VOR has made significant progress due to the support of loyal members like you. We now desperately need your continued support. I served for six years on the VOR board and I have seen the organization grow stronger each year – we are finally being listened to in Washington and can continue to make important decisions especially along the lines of continuing the important services such as we have at Sonoma Developmental Center.

Your membership provides you with VOR’s Weekly E-Mail Update, VOR’s newsletter – The Voice, regular Action Alerts, the Annual Membership Conference and Initiative, individual advocacy assistance, legislative and legal advocacy, an informative website www.vor.net, access to speakers and direct support from the VOR Board of Directors and VOR staff.
  • VOR secured introduction of federal legislation (H.R. 2032), which would restore individual and family decision-making in certain federally funded deinstitutionalization lawsuits, such as the awful Coffelt Lawsuit that happened years ago here in California that destroyed so many lives and families.
  • VOR has urged Congress to call for a moratorium on federal deinstitutionalization lawsuits citing well-publicized “community-based” tragedies. We called the response by federal agencies to these tragedies “woefully inadequate and incomplete.” In other words, agencies such as Protection and Advocacy did nothing to deal with the high mortality rates following the placements out of the DC’s to community board and care homes or group homes.
  • VOR’s Legislative Committee launched its “DD Act Advocacy Project” to help propel forward our multi-year initiative aimed at reforming the law that funds Protection & Advocacy (P&A) agencies and DD Councils, groups that routinely disregard choice and family decision-making.
  • VOR petitioned the White House to reform the system of care serving people with intellectual disabilities, pointing to program cuts, abuse and neglect, and long waiting lists as symptoms of a crisis that is harming people.
  • VOR has provided legal advocacy to families in several states as they challenge federal actions to close centers.
The VOR mission is to protect our developmentally disabled loved ones wherever they live!

For your convenience, below is a membership form along with a self-addressed envelope. You may also renew your membership at www.vor.net/join-now, whichever method is most convenient for you, but please do renew your membership – it is super important! I am aware of how difficult it is at this time of the year when you are being asked so often to contribute to different areas of the system, but again, we need your support to strengthen our family advocacy in Washington, D.C., enhance our grassroots leadership and support the legislation that VOR has sponsored to put an end to the closure of facilities that offer centralized, specialized services like SDC. My sincere thanks to all of you and again enjoy the Holidays.

Sincerely,
Mary C. O’Riordan
PHA Past President; VOR Past Board Member; VOR Development Committee Member

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(You can also download a copy (pdf) of the form below by clicking here.)

VOR-membership

Thursday, November 29, 2012

Annual Holiday Tree Lighting Set for Dec. 11 at SDC

Rain, snow, sleet or shine, the annual tree lighting celebration is set for Tuesday, Dec. 11, from 3:30 to 5:00 p.m. Come join in -- and vote for your favorite tree!



2012 Holiday Craft Fair at SDC -- Coming Dec. 5th and 6th

The ever-popular annual holiday craft fair is back at Sonoma Developmental Center again this year -- and it's just a week away.

Always a fun and festive time to kick-start your holiday shopping, the Fair is happening next Wednesday and Thursday, both days from 10 a.m. to 4 p.m. Come early -- stay for lunch -- and shop 'til you drop!


Tuesday, November 27, 2012

Mark Your Calendars Now for 2013 PHA Events

The holidays are a busy time and the new year will be here before we know it -- so mark your calendars now for these important dates coming up in 2013.






Saturday, January 12, 2013
PHA General Meeting
10 a.m. - Noon
McDougall Hall at SDC

On the Agenda:
  1. A representative for the North Bay Regional Center will speak about changes in the IPP process with the addition of new trailer bill language in the Lanterman act. This new language states that every resident of a developmental center must be assessed for community placement. Find out how exactly this will be implemented by the regional centers.
  2. Pat Walter will present on the same issue from the perspective of a family member. She will review the IPP process and how families can best protect the interests of resident family members.
  3. Kathleen Miller will talk about easy practical steps that can be taken by each of us best prepare us for the IPP road ahead. 

Saturday, March 9, 2013
Annual Legislative Meeting
10 a.m.
McDougall Hall at SDC

This is our big yearly legislative meeting and everyone should plan to attend! The format will be slightly changed this year to allow for more access to those who wish to speak.
Stay tuned for further details.



Saturday, April 13, 2013
An Evening in Wine Country
at the Vintners Inn

This elegant and exciting event is our only fundraiser for the entire year and it funds all the activities of the PHA. We would truly love to see you all there to welcome you and join you in celebration for what PHA has and continues to achieve. PHA is one of very few organizations that receives no public funds or support and exists only to further the interests of California’s individuals with developmental disabilities. Your support for this effort is honored and appreciated!

Wednesday, November 14, 2012

Local Paper Reports on New Appointment at SDC

This week the Sonoma Index-Tribune picked up the story of the continuing management changes at Sonoma Developmental Center. The article ran on Tuesday, November 13, 2012, but is not available in the online edition of the paper. We repeat it below for those of you who don't have access to the newspaper.

Leadership shuffles continue at SDC

By John Capone
Index-Tribune Staff Writer

The state Department of Developmental Services (DDS) has named Patricia Flannery new interim director of the Sonoma Developmental Center (SDC), replacing previous interim Director Karen Clark. Flannery is also the sitting deputy director for developmental centers at DDS in Sacramento, a position from whick she is not believed to be stepping down.

Clark took the reighns as interim director of the SDC in August after Jim Rogers resigned.
Rogers' resignation came in the wake of a string of reports of staff abuses and an investigation into incidences of stun guns being used on patients in which the FBI became involved. No charges were filed following that investigation, though a suspect, an SDC employee hamed Archie Millora who had a Taser and a loaded handgun concealed in his car, was arrested and charged with have a concealed weapon, a misdemeanor.

Initial comments from DDS Director Terri Delgadillo indicated Rogers had been fired, though Rogers' departure was later characterized as "retirement."

Clark had previously been the administrative services director at SDC, and had worked within the DDS for more than 30 years, mostly at Agnews Developmental Center, before coming to SDC in 2009. Sources within SDC said that little information about Clark's departure has been shared by DDS administration, but that the feeling among staff is Clark was "asked to step down."

The clinical director position at SDC has been a similar revolving door. In June Glenda Penny, a DDS administrator from sacramento, replaced long time SDC staffer Dawn Percy. Penny, in turn, was replaced last month by Terri Sievers.

Officials at the DDS could not be reached for comment about the staff changes.

Tuesday, November 6, 2012

Patricia Flannery Now Acting Director of Sonoma Developmental Center

Message from PHA President Kathleen Miller:

Following another successful and fun Halloween parade it appears that Karen Clark was asked to step down as interim Executive Director of Sonoma Developmental Center. No reason for the action was given. On behalf of PHA I would like to express our thanks to her for her hard work as Executive Director. We are particularly grateful for her efforts during the difficult licensing survey. I understand that she will be returning to Sonoma in her previous position.

Patricia Flannery will be taking over as Executive Director but she has made clear that this is only temporary and she will also be continuing in her position as Deputy Director at DDS. We welcome Patricia Flannery to the Sonoma team but have concerns over what have been frequent disruptions to the leadership team at Sonoma. Further it is unfortunate that at this particularly challenging time-licensing has still not completed its survey- there is no consistent and committed team over seeing the care of our family members.

Ms Flannery will be attending the November 10th PHA meeting and will be giving an update at that time.

Harvest Day at the SDC Farm - Nov. 10th

Come enjoy the farm, the SDC community, the season, and the beautiful Sonoma Developmental Center campus Saturday, November 10, 2012, from 10 a.m. to 12 noon -- music, crafts, animals and fun for all!


For more information, call REACH x6246.

Monday, October 29, 2012

Lanterman Families Seek Moratorium of Closure - Cite Problems at Senate Hearing

Many Lanterman families testified at the Senate Gearing on Oct. 23, 2012, to problems with the Lanterman closure including placement of Lanterman residents in homes that were unprepared - the death of one consumer was cited as related to this issue. Also, promises of Lanterman staff being kept on as state employees has not been finalized resulting in many staff leaving Lanterman for other jobs.

After hearing their testimony I choose to add my voice to theirs in seeking a moratorium to the closure process until issues can be addressed. Please review the moratorium document and add your voice in support if you agree with their requests.

To join with Lanterman families you simply email either Steve Johnson at stejohns@ureach.com or Jerra Letrich at jletrich@sbcglobal.net to add your voice to theirs. I believe it is important to stand with families who seek only to advocate on behalf of those they love.

Kathleen Miller, PHA President 

Lanterman Moratorium Letter
October 23, 2012

To Joint Senate Committee Hearing Members,

Families and advocates of residents at Lanterman Developmental Center (LDC) write to you in desperation, requesting your intervention in the closure process of Lanterman Developmental Center (LDC). Our confidence continues to erode that the Department of Developmental Services (DDS) will deliver on commitments made nearly three years ago when they announced the closing of the Center, documented in the LDC Closure Plan which was approved by the California Legislature.

Two years of meetings between the DDS and representatives of LDC families to effectively address the health and safety concerns of movers as well as residents who continue to reside at LDC have failed. We are writing because many families have lost confidence in the often frustrating negotiations with the Department, and, as a last resort, turn to our elected officials for resolution. Just a few of the problems brought repeatedly to the DDS which have not been adequately addressed are:
  • Unrepresented LDC clients being moved into community homes which do not meet the high standards set in the LDC closure plan. Movers have experienced declining health and hospitalization. A number have died; one merely three weeks after being transitioned. 
  • The community state staff program (CSS) has not been implemented, even as 140 LDC residents were moved to community placements, and even after DDS called the CSS program a critical part of the success of the Agnews’ closure. Failed placements out of LDC are likely a result of novice community caregivers unfamiliar with the needs of this very fragile population. DDS claims they are powerless to implement the CSS program, yet it is unclear why.
  • No data has been provided by the Department on the outcomes of the initial 140 movers. A handful of success stories offered by the regional centers are not statistically relevant. DDS and the regional centers must be tracking the transition data of every placement to date. When will they provide this information to reassure families and legislators that placements are happening successfully, and that deaths are being fully investigated?
  • The quality of services at Lanterman is declining, violating the guarantees of the Lanterman Act. Experienced, well trained staff are departing, through attrition and layoffs. Staff morale is in decline and resident consolidations result in unfamiliar staff caring for clients. Therapeutic and recreational staff, as well as chaplains, are leaving, further reducing the quality of life for the residents who live day to day in a world of uncertainty.
  • Regional Center employees tell families the new care home models are still under development. Some will not be available for a year or more. Meanwhile, services at LDC are being cut back or discontinued; the Rustic Camp recreation area, the church services, and the Café.
  • Hopeful families attended a meeting at LDC on Saturday, October 13, 2012, to again raise these issues with DDS Director Delgadillo. While there were hours of discussion, no suitable solutions were offered to alleviate families’ concerns.
After two years of negotiations with DDS, families have no choice but to take further action. The lives of the most fragile and behaviorally challenged clients are at stake. As conditions at LDC further deteriorate and promised community options fail to materialize, we must act. We call for a moratorium* on placements out of LDC until:
  1. The community state staff program is fully implemented, and providers have hired employees from LDC to provide direct care in the homes.
  2. Data is made public demonstrating outcomes of every LDC mover to date, commencing from January 1, 2010.
  3. Assurances are provided, in writing, that downsizing at LDC will be suspended until community services development has been completed.
  4. Programs at LDC will not be downsized or eliminated until all clients have been transitioned.
  5. Family rights, documented in the DDS Individual Program Plan manual, will be respected during the planning team process, and families will not be pressured to accept placements that are not equal or better than what their loved one currently receives at LDC.
*While we call for a moratorium on placements, we support families who wish to proceed with their child’s transition. Our request is for a moratorium on placements of unrepresented clients or those whose families wish to wait until a satisfactory community option is available.

Two years of unproductive negotiations, empty promises and broken commitments are enough. Families and advocates of Lanterman residents plead with legislators to call for a moratorium on placements out of Lanterman Developmental Center, until all health and safety concerns have been addressed.

Respectfully,
Lanterman Families

Thursday, October 25, 2012

PHA President testifies at Senate Hearing on Sonoma Developmental Center

Kathleen Miller, PHA President, testified at the Senate hearing on developmental centers on Tuesday, October 23rd, in Sacramento. Below is her statement to legislators.

I have been asked to give the perspective of the families and friends of Sonoma Developmental Center residents on recent events at SDC, including the current licensing survey. First though, I need to give a brief background about the majority of SDC families. We, as family members of developmental center residents, frequently hear that we dropped our children off at birth at and never looked back. We hear that we fear alternative placements because we don’t know what is available outside the centers. The truth is that most residents have involved families and many residents have had experiences with private placements outside the centers. Families continue to choose the centers for their loved ones because they remain convinced that is the best, safest, place for them. The day I see a better alternative for my son, a resident of SDC, is the day I start packing his bag. This is why it is so difficult to hear the latest in a long series of myths about developmental center families-that we are so eager to keep the centers open, we are willing to overlook abuse that occurs within them.

Nothing could be further from the truth. We have learned, often from years of negative phone calls, to dread bad news and no news is more hurtful than hearing your loved one has been the victim of abuse. But we do not believe that private placements outside the center offer any greater protection or safety, and we know that often it is far worse. We join with everyone here in wanting to explore ways that will help with prevention of incidents of abuse both inside and outside the centers.


I have been asked to give the family perspective on how such abuse can be reduced, or avoided at SDC and by extension, the other developmental centers. 
Sonoma has two populations: medically fragile nursing residents and behavioral residents. Licensing has been looking in depth at behavioral residents the incidents cited have taken place on maybe two or three units within those programs. They have not occurred on the nursing side. It is important to note that the residents involved have serious behaviors and would be challenging and expensive to serve in any setting.


The first step in preventing or addressing issues of abuse is to make sure that it is easy, and not punitive, for staff to report potential abuse if they see something suspicious. The reporting process needs to be clear and streamlined. We have been assured that this has been addressed and are happy to hear this. It is mainly line of care staff who in a position to notice and report and they are the most busy dealing with residents. The process must be clear and simple for them-not just the administration.


Next is the issue of staffing. I have written repeatedly about how line of care staffing levels have sunk to dangerous levels and how staff are repeatedly held over to work double shifts on the units. The good news is that after years of hiring freezes SDC is now in the process of hiring. Families are relieved to hear this. One issue that remains unaddressed, However, is the reduction and elimination of programs and opportunities for behavioral residents to engage with others, work, be challenged, and have new experiences, including access to the greater Sonoma community. As program after program has been reduced or eliminated the world of the behavioral residents has shrunk, and boredom has become the new normal. Unfortunately, when our behavior residents are bored they can come up with behaviors to deal with that. There is a reason licensing continues to cite active treatment as a condition that is out of compliance. Consider the scene on these behavior units: Short staff and tired, overworked staff, few activities, bored behavior residents. It can be a recipe for abuse. Thus, families want the issues of staffing and programming addressed.


A related issue is the lack of willingness by some in administrative positions to continue to provide varied and new work and leisure experiences for Sonoma residents. I know you are all thinking that this is just another money issue, yet another plea for more funds. It is not. There are many opportunities already available on SDC grounds to provide this work variety, there are vans to take residents on community outings, there are creative ways to have residents help on the farm, bring in volunteers, stretch the world for SDC residents, but ideas are too often discouraged or abandoned. I feel there has been a slow but steady decline in the willingness to take on new ideas and challenges. There are too many reasons why things can’t happen and too little support to assure that they do. This all ties in directly to the active treatment issues cited by licensing and the boredom that leads to escalated behavior problems and potential for abuse. The message from the top must be one of openness, engagement and support for those who are trying to enrich the lives of the residents at SDC every day in every way. These attributes made SDC a fruitful and thriving community. The families want that back.


The last issue families are focused on is the persistent lack of communication and inclusion at SDC. I admit that I have not done enough to seek out regular meetings with the SDC administration and they in turn have chosen to communicate only at the regular PHA meetings, rather than one on one. I believe there is room for improvement. Communication to and inclusion of families is a serious issue. All too often significant changes impacting the residents are simply announced to families as final decisions, not arrived at as part of the team process involving families. At times changes have happened without any notice to the family/conservator. Let me be clear-this is against SDC policy and it is against the law. Further, it is impossible for us as family members to protect and advocate when we are not informed. We are part of the team and must be included in the decision-making process. We are the front line in advocacy and prevention of abuse. We need to be included and to have full and regular disclosure in order to best exercise our role as responsible advocates.


Finally, families need access to and regular communication with you. You need to hear from us and we need to hear from you. I feel a regular bi-monthly communication would help us all to track the concerns of DD population both inside and outside the centers. We all need to work together and communication is the key first step.

Monday, October 22, 2012

It's Time to Renew Your PHA Membership

It's that time of year when the Parent Hospital Association members are reminded to renew their membership -- and new members are encouraged to join.
YOUR MEMBERSHIP IS IMPORTANT!
  • The size of an organization is measured by the number of members.
  • A large organization has more clout when delegates meet with legislators in Sacramento and Washington, DC.
So, it’s important that you renew your membership and send in your dues now. Encourage all your family members to renew their membership also as this will increase the number of members; encourage relatives and friends to become members of PHA as well. All of this will help to increase our membership, which is so important at this time, and strengthens our influence when we advocate for our developmentally disabled loved ones with legislators. 

PHA assists family members who request help with IPP meetings and with those needing help obtaining conservatorships of their loved ones.  Please join us for 2013. 
Beverly Austin

If you received a copy of the latest Gazette, you will have found a membership form on page 4. Those forms should be returned to Bev Austin, 2683 17th Avenue, San Francisco, CA 94116.

PHA-Membership-form

Wednesday, October 17, 2012

The Dismantling of Sonoma Developmental Center

The following message from PHA President Kathleen Miller is also included in the latest edition of The Eldridge Gazette. You can access a copy of the Sept/Oct 2012 Gazette by visiting the Resources page of this blog and downloading a copy (pdf). Back copies of The Eldridge Gazette are also available.

It has been over ten years since my son first became a resident of Sonoma Developmental Center. In fact it was over ten years ago that I first became a social worker for the center. While ten years is a considerable length of time there are those of you who have been involved with the center for much longer.  In those ten years I have seen many changes come to Sonoma Developmental Center. I am certain that you all have seen them as well. I want to talk here about those changes and what they mean for those who live there.

THE POPULATION - We are all aware that the population has and continues to shrink. Some of this is due to the aging of the residents. Sadly deaths do occur, particularly among the medically fragile many of whom have lived well beyond their life expectancies.

However, it is also due to policies that put pressure on regional centers to place residents into board and care homes outside the center. Recently the Department of Developmental Services sponsored a trailer bill that prevents any admissions to Sonoma Developmental Center for any reason! Pressure to place outside the center continues. I get calls from families all the time, some with family living inside Sonoma who are being pressured to place their family member in a board and care and some outside Sonoma where the placement is not working seeking a way into Sonoma. I am forced to let them know that there is no way in.

UNIT CLOSURES – The number of unit staff is based on the number of residents so as the population declines it becomes necessary to close units in order to staff those units remaining. Since transfer trauma is real, closures do mean an increased risk to residents. Most residents are able to adapt, but for an unlucky few this has not been the case. For fragile Sonoma residents, moving to a new environment can mean escalating behaviors, increased medical issues, and in a few rare but very real cases, death.

PROGRAMS – I have seen programs shrink or be eliminated altogether. When the Sunrise worksite in the community was shut down families received assurances that there would be efforts to take the Sonoma residents who worked there out into the community for regular outings. This could make up for the closure of the community worksite where trips to restaurants, to the bank to cash their earnings and spend them, and training on how to access public transportation, were part of the daily fare.

But worksite trips to the community have not taken place as promised.  In truth classes and groups have been cut and programs and positions have been eliminated. Opportunities that were available for former residents to make camping trips or outings to camp via, have summer swim parties, work in the community, have water therapy, participate in the MOVE program and on and on no longer happen. As the programs are eliminated the world of Sonoma’s residents shrinks along with them.

STAFFING – We have only to visit our family members on the weekend to be aware of staffing shortages. If we come at shift change we are likely to interrupt staff calling around to see if anyone wants to take the next shift so they won’t be held over and miss… We may be seeing new staff who have floated from another unit and are unfamiliar with and have no relationship with our family member. We may be told the community outing did not go forward because there was not enough staff to make it happen. We are not usually told if the minimums on your family members unit have decreased meaning there is one less staff working with the same number of residents. 

Staffing issues at Sonoma have become a chronic issue. I am so delighted that at last we are hiring some new staff. I hope it is enough to restore some of the former vitality to the units.

WHAT YOU SHOULD KNOW – I am a broken record in saying that
  1. You should know what your family member/conservatee does every day. If you know their program you will also know when a change occurs. Remember you are an important member of the team.
  2. You should also know that policy states that you need to be informed of any change in service and that if you are not happy about the change you can file for a fair hearing.
  3. You should know that applying for a fair hearing, while not always a solution, is the only and best way for you to stand up for your conservatee/family member if you disagree with a change, and you should know that the process is simple. You also need to know that PHA stands ready to help if you decide to take that step.
  4. Often you will do better for your family member if you work in cooperation with the team. Remember that most staff want to do what is best for residents and may be willing to work with you in finding a way around program cuts.
All this adds up to long-standing policies and practices that have taken a toll on the care that our loved ones receive at Sonoma. Make no mistake however, the medical team continues to be top notch, the large majority of staff treat the residents with care and respect, and each resident does receive some daily programing. The team approach that has been the backbone of Sonoma still exists and the oversight is still unmatched. These are some of the reasons that families remain committed to having their family members remain at Sonoma. However, the changes cannot be ignored either. Your continued involvement is key to your loved one receiving the services needed to sustain him or her with a positive quality of life!
Kathleen Miller, PHA President
kjmillerkoch [at] yahoo [dot] com

Wednesday, October 10, 2012

Developmental Center Hearing Scheduled for Oct. 23rd in Sacramento

There is a hearing on developmental centers on the October, 23, 2012, in Sacramento. The hearing is dealing with the licensing survey and the recent language forbidding all admissions to Sonoma Developmental Center. It begins at 10 a.m., and public comment is allowed.

Licensing has been looking at Sonoma with an extended visit. This hearing would be a good opportunity to let legislators know that while you support oversight you still believe Sonoma is the best, or only, place for family member.

PHA President Kathleen Miller will be in Sacramento on the 23rd to welcome any members who can join with PHA in representing SDC residents. If you can not attend, you can also contact Kathleen with any questions or concerns that you would like her to pass on.

email Kathleen Miller at kjmillerkoch [at] yahoo [dot] com

Monday, October 8, 2012

Local Paper Picks Up PHA President's Comments on SDC

The following article ran recently in The Kenwood Press as a guest editorial. It comes after several months of attention focused on California's developmental centers and Sonoma Developmental Center in particular.

Clarifying the situation at SDC

by Kathleen Miller, President, Parent Hospital Association

PHA (Parent Hospital Association) is an organization that includes the families and friends of the residents of Sonoma Developmental Center (SDC). Our primary focus is the safety and well-being of SDC’s residents. We support three guiding principles: transparency, open communication, and options for California’s developmentally disabled citizens. We also continue to support the Sonoma Developmental Center as one option for a select group of vulnerable disabled and we continue to believe in the care given to our loved ones residing at SDC.

Recently there has been a series of news articles that portray Sonoma Developmental Center and the care there in a negative context. While we welcome oversight, including the coverage on issues by the news media, we are concerned that some of these articles and stories contain inaccurate information and do not fairly portray SDC, its staff and residents. We also are concerned that in recent months there has been a decline in the care of SDC residents. In reviewing the hundreds of pages from the recent licensing survey of the behavioral residents at SDC, a common thread appears – reductions in staffing have led to staffing shortages that have directly or indirectly contributed to many of the concerns cited in the licensing survey.

In one article by California Watch, Terri Delgadillo, Director of the Department of Developmental Services (DDS), stated that she “recognizes the actions necessary to ensure the health and safety of the residents of Sonoma Developmental Center.” She goes on to talk about how she has replaced executive staff. Such actions are insufficient. The truth is that SDC has a history of staff shortages. The shortages have been compounded by salaries that are noncompetitive with salaries at other mental health and correctional facilities in the state. They have been further impacted by furloughs and long standing hiring freezes. The DDS response to these shortages is to reduce allocations for line-of-care staff and other licensed positions. Even with these reduced standards, overtime has been a continuing issue at SDC with line-of-care staff being subject to mandatory holds (overtime).

It is the role of DDS to oversee the developmental centers and ensure the care and safety of the residents. We recognize that the staff at SDC and DDS have worked hard on plans to improve the care at SDC, and we commend their efforts. However, even in light of the recent licensing survey, DDS is trying to once again reduce staffing standards in a behavioral unit. The most recent survey was no doubt influenced by the recent media reports and, in fact, cited the highly publicized incidents in their report.

Importantly, we want to point out that SDC has not, in fact, lost their certification for behavioral residents, despite the recent licensing survey. Further, the recent licensing survey for the nursing residents found no conditions out of compliance. The news articles on the licensing survey were incorrect in stating that SDC was the only developmental center in danger of losing certification. In fact, Porterville Developmental Center has no current certification for many of its residents.

While SDC has lost certification in the past, as have other developmental centers, they have successfully regained it when plans of correction were put into place. It is the job of the licensing staff to identify deficiencies and to seek improvements in the system. We must be careful not to allow the media to misstate or sensationalize a process that is an inherent and necessary part of the system.

A sister paper to California Watch, the Bay Citizen, recently issued a story entitled “14 California Hospitals Fined for Dangerous Mistakes.” It is not at all uncommon for licensing to find conditions out of compliance in many of their surveys. Sometimes when you go in with a hammer, you are going to find a nail. This is the process that allows for growth and improvement in the care at the centers and in other health care settings.

We also feel it is important to shed the light not just on the potential for abuse at the developmental centers, but elsewhere in our service system. It is a sad fact that despite hiring practices that attempt to exclude those who might do harm, a few bad apples get through. The hiring practices at SDC match or exceed those for community homes in their scrutiny of potential employees. The reporting practices and procedures at SDC exceed those in place in any other setting. The abuse at SDC was discovered because alert staff reported it.

Families of SDC residents have concerns that in isolated community homes where sometimes only two individuals may be working at a time, and those may be friends or family members, reporting may actually be less likely to occur. The truth is there is often no way to know what goes on in some community homes. The Department of Health works hard to oversee some community homes, but many are solely licensed by the Department of Social Services (DSS). Some community homes may not receive a visit from DSS staff even once a year! We feel there is room for improvement in the oversight of many community homes.

We are grateful for the intense scrutiny that takes place at SDC and feel that as much as possible, it ought to be duplicated in community homes as well.

Finally we are concerned that there is little transparency about what happens to developmental center residents who are placed into alternative homes outside the center. We requested data from the DDS on behavioral clients who have left the centers in the past few years to see how many were forced out of their alternative homes and ended up in acute psychiatric settings or even jail. At first we were provided information indicating that there were no such instances. When we challenged that information, we were told by DDS that they did not have access to that data. When we sent a Public Records Act request to get information on the incidents of deaths during the transition and closures of Agnews and Lanterman Developmental Centers, we were, and continue to be, largely ignored. This, despite the fact that the closure laws themselves called for analysis and reporting on the impacts of these closures.

How can we trust that alternative placements will live up to the needs of our loved ones when we cannot know the results for those who have already been displaced from the centers? We have been told many anecdotal success stories, but these are not enough. We need the facts!

For the reasons listed above, and many more that include our own personal stories, we continue to believe in the care SDC provides for our loved ones and pray that it continues to remain an option. Refine it, improve it, even restructure it, but do not let us lose it. There simply is no replacement that has worked for our loved ones who call it home.

Wednesday, October 3, 2012

Developmental Center Bills Approved by the Governor

Two bills affecting the way California runs its developmental centers were approved by the Governor days before the September 30th deadline. Both bills expedite a developmental center's report of any incident of resident harm or death and more clearly define the internal protection
agency's responsibilities.

California Senate Bill 1522, introduced by Senator Mark Leno, which proposed new reporting requirements for the State's developmental centers, was signed by Governor Brown on September 27th, along with SB 1051, a bill similarly designed to improve reporting procedures as well as set certain qualification requirements for the Director of Protective Services. 

(see SB 1522 (Leno) - search Chapter 666 in 2012)
(see SB 1051 (Emmerson and Liu) - search Chapter 660 in 2012)

SB 1522 and SB 1051 will also require developmental center employees to get further training on the reporting of abuse incidences. Both were introduced in the wake of specific problems at Sonoma Developmental Center.

Tuesday, September 18, 2012

An Open Letter to Legislators from PHA

PHA is an organization that includes the families and friends of the residents of Sonoma Developmental Center (SDC). Our primary focus is the safety and well being of SDC’s residents. We support three guiding principles: Transparency, Open Communication, and Options for California’s developmentally disabled citizens. We also continue to support the Sonoma Developmental Center as one option for a select group of vulnerable disabled and we continue to believe in the care given to our loved ones residing at SDC.

Recently there has been a series of news articles that portray Sonoma Developmental Center and the care there in a negative context. While we welcome oversight, including the coverage on issues by the news media, we are concerned that some of these articles and stories contain inaccurate information and do not fairly portray SDC, its staff and residents. We also are concerned that in recent months there has been a decline in the care of SDC residents. In reviewing the hundreds of pages from the recent licensing survey of the behavioral residents at SDC, a common thread appears - reductions in staffing have led to staffing shortages that have directly or indirectly contributed to many of the concerns cited in the licensing survey. In one article by Cal Watch, Terri Delgadillo, Director of the Department of Developmental Services, stated that she “recognizes the actions necessary to ensure the health and safety of the residents of Sonoma Developmental Center”. She goes on to talk about how she has replaced executive staff. Such actions are insufficient. The truth is that SDC has a history of staff shortages. The shortages have been compounded by salaries that are noncompetitive with salaries at other mental health and correctional facility in the state. They have been further impacted by furloughs and long standing hiring freezes. The DDS response to these shortages is to reduce allocations for line of care staff and other licensed positions. Even with these reduced standards overtime has been a continuing issue at SDC with line of care staff being subject to mandatory holds (overtime). It is the role of DDS to oversee the developmental centers and ensure the care and safety of the residents. We recognize that the staff at SDC and DDS has worked hard on plans to improve the care at SDC, and we commend their efforts. However, even in light of the recent licensing survey DDS is trying to once again reduce staffing standards in a behavioral unit. The most recent survey was no doubt influenced by the recent media reports and, in fact, cited the highly publicized incidents in their report. Importantly, we want to point out that SDC has not, in fact, lost their certification for behavioral residents, despite the recent licensing survey.

Further, the recent licensing survey for the nursing residents found no conditions out of compliance. The news articles on the licensing survey were incorrect in stating that SDC was the only developmental center in danger of losing certification. In fact, Porterville Developmental Center has no current certification for many of its residents. While SDC has lost certification in the past, as have other developmental centers, they have successfully regained it when plans of correction were put into place. It is the job of the licensing staff to identify deficiencies and to seek improvements in the system. We must be careful not to allow the media to misstate or sensationalize a process that is an inherent and necessary part of the system. A sister paper to Cal Watch, the Bay Citizen recently issued a story entitled “14 California Hospitals Fined for Dangerous Mistakes.” It is not at all uncommon for Licensing to find conditions out of compliance in many of their surveys. Sometimes when you go in with a hammer, you are going to find a nail. This is the process that allows for growth and improvement in the care at the centers and in other health care settings.

We also feel it is important to shed the light not just on the potential for abuse at the developmental centers, but elsewhere in our service system. It is a sad fact that, despite hiring practices that attempt to exclude those who might do harm, a few bad apples get through. The hiring practices at SDC match or exceed those for community homes in their scrutiny of potential employees. The reporting practices and procedures at SDC exceed those in place in any other setting. The abuse at SDC was discovered because alert staff reported it. Families of SDC residents have concerns that in isolated community homes where sometimes only two individuals may be working at a time, and those may be friends or family members, reporting may actually be less likely to occur. The truth is there is often no way to know what goes on in some community homes. The Department of Health works hard to oversee some community homes, but many are solely licensed by through the Department of Social Services (DSS). Some community homes may not receive a visit from DSS staff even once a year! We feel there is room for improvement in the oversight of many community homes. We are grateful for the intense scrutiny that takes place at SDC and feel that as much as possible, it ought to be duplicated in community homes as well. Finally we are concerned that there is little transparency about what happens to developmental center residents who are placed into alternative homes outside the center. We requested data from the DDS on behavioral clients who have left the centers in the past few years to see how many were forced out of their alternative homes and ended up in acute psychiatric settings or even jail. At first we were provided information indicating that there were no such instances. When we challenged that information, we were told by DDS that they did not have access to that data. When we sent a Public Records Act request to get information on the incidents of deaths during the transition and closures of Agnews and Lanterman Developmental Centers residents, we were, and continue to be, largely ignored. This, despite the fact that the closure laws themselves called for analysis and reporting on the impacts of these closures. How can we trust that alternative placements will live up to the needs of our loved ones when we cannot know the results for those who have already been displaced from the centers? We have been told many anecdotal success stories, but these are enough. We need the facts!

For the reasons listed above, and many more that include our own personal stories, we continue to believe in the care SDC provides for our loved ones and pray that it continues to remain an option. Refine it, improve it, even restructure it, but do not let us lose it. There simply is no replacement that has worked for our loved ones who call it home.

We hope you will continue to support the PHA family group at Sonoma DC in our efforts to improve the center and increase transparency and communication. We also hope you will consider additional oversight for community care homes.

Sincerely,
President Kathleen Miller and the PHA Board of Directors

cc: Legislative offices and committees, Department of Developmental Services, North Bay RC, East Bay RC, Golden Gate RC, San Andreas RC, The ARC, CDCAN, VOR, Sonoma News, Kenwood Press, California Watch News, Lanterman, Fairview, and Porterville families

---

To download and print a copy of this letter, click here. (pdf)

Thursday, September 13, 2012

News updates for the week of Sept. 10th

:: Reforms for Office of Protective Services go to the governor

According to a news report by California Watch earlier this month, two bills that would require outside law enforcement and advocates to be informed about alleged crimes against the residents of California’s developmental centers have reached Gov. Jerry Brown’s desk.

Brown has 30 days to sign the legislation – SB 1051 and SB 1522 – into law or veto the measures. Both bills are designated urgent, so they will take effect immediately if the governor approves them.

:: Comment period on Lanterman Center closure timeline ends September 14

A recent California Disability Community Action Network (CDCAN) report provided an update on the Lanterman Center closure.

Tomorrow -- September 14, 2012 -- is the last day to submit written comments or questions on the issue of establishing milestones in the closure of Lanterman Developmental Center. You can read CDCAN report here: CDCAN REPORT #150-2012.

Individuals and organizations can provide comments on this issue – or ask questions regarding this specific issue by sending to the addresses below.
DEADLINE TO SUBMIT WRITTEN COMMENTS:  September 14, 2012 – Friday

WHERE TO SEND COMMENTS – BY EMAIL: Send email with comments (or
questions) to John Schmidt, Department of Developmental Services at john.schmidt@dds.ca.gov

WHERE TO SEND COMMENTS – BY US MAIL:
Send written comments by US Mail (or other similar delivery) to:
Department of Developmental Services
Attention: John Schmidt
1600 9th Street, Room 240, M.S. 2-13
Sacramento, CA  98814

QUESTIONS OR CONCERNS:
Contact John Schmidt
at the Department of Developmental Services at 916-654-1902 or the
email address above.

:: Special Needs hotline in the works after South Bay tragedy

After hearing about an overwhelmed mother who killed her son and herself, concerned parents are creating a hotline for families of those with disabilities to turn to in times of need.

Nearly 80 parents of kids and adults with developmental disabilities are on board to volunteer for the new hotline that’s expected to serve the greater San Jose, Calif. area.

:: SCOE classes to continue for residents of SDC

There was some good news reported at last Saturday's general membership meeting. Although the State eliminated most funding for the Sonoma County Office of Education in the recent budget, the Center and DDS have stepped in with funding and classes for residents of Sonoma Developmental Center will continue.

Wednesday, August 29, 2012

Families Devastated Over Judah Closure

UPDATE (9/18/12): Fair Hearing Process Cut Short

The last few days I have learned that moving the men from Judah has continued, seemingly at full speed. Only Dale’s move has been put on hold. From the bits and pieces I’ve been able to learn, I think Dale’s friends have already been moved or will be moved this coming week.

After much thought, in brief, I have come to the conclusion that the Fair Hearing process is or will be more upsetting for Dale than the move to another unit. Therefore, tomorrow I will take whatever steps necessary to withdraw the request for a Fair Hearing.

At least I've learned two facts: 1) “Fair Hearing” is anything but fair. 2) What I thought was my legal right as a conservator to be duly informed has been/is being totally ignored. (At Dale’s semi-annual IPP June 21, 2012 absolutely nothing was mentioned regarding the closure of Judah or moving Dale to another unit.)

Thanks to all for your support, Sue Donaldson.

---

PHA received news that Judah will be closing in the near future. Judah is a unique unit for male only behavior residents. Many of those residents have called Judah home for years and have forged relationships with staff and peers.They are one of Sonma's most vulnerable populations.

The closure of Judah at this time is puzzling for a number of reasons. Cochran, another behavior unit has only 11 residents. Of those 11, four are planning moves to community homes leaving only seven Cochran residents. Judah has 21 residents.

One reason some families were given is possible PTSD syndrome for Judah residents from the well publicized taser incident that took place one year ago. However other non Judah residents were also involved and this suggests that taser incidents occured off unit at the worksite. Clearly this explanation makes no sense. Further, members of PHA received assurance that Judah staff had been moved to break up any groups who "should have known" and reported abuse.

It is possible that the closure is for political reasons. Perhaps the publicity was an issue. Perhaps the closure was included in the Plans of Correction. Whatever the reason it is not one based on the needs of the residents. It appears Judah residents are to be subjected to further trauma.

---

The following letter from Sue Donaldson, a parent of a Judah resident, was recently sent to Karen Clark, Executive Director of Sonoma Developmental Center. We reprint it here with Sue's permission.

August 26, 2012

Karen Clark, Executive Director
Sonoma Developmental Center
P. O. Box 1493
Eldridge, CA 95431

Dear Karen:

I appreciate you meeting with me last Friday and sharing some information regarding the closure of Judah which was/is my main concern. However, after much thought, I do not believe that PTSD (Post-Traumatic Stress Disorder) as a reason makes sense; neither does the haste (by November 1) in which the closure is being conducted.  Further, I did not hear a comprehensive plan for the closure; I also wonder why there seems to be a shroud of secrecy.

First, taser victims were from units other than Judah and understand the work site was also involved. Why is Judah the victim? Dale has been on several visits with his parents in Santa Rosa and sister in Point Arena since we were informed in late September 2011 that he was one of twelve taser victims. Also, there has been three JUFSG (Judah Unit Family Support Group) parties/luncheons. There was no notable difference in Dales or other Judah residents behavior. I believe with all my heart and soul that closing Judah will be much more traumatic than the long ago taser event. Not only will the men be taken from their home of many years, they will be separated from their friends. Judah has been Dales home for thirty years. The way I see it, the taser victims will once again be victims and more likely to exhibit PTSD and the return of resolved behavior problems.

In addition, the Judah closure will impact residents on other units; I understand the men will be relocated to at least three other units in program 4. In turn, some residents on these units will be moved to units in other programs. The rush to close Judah makes me strongly feel that Dale and all the other residents involved are being treated like merchandise instead of human beings. I was notified of the November 1 closure August 17. The more recent closures of units has been announced publicly several months in advance along with comprehensive plans.
[According to my parent/family group newsletter archives, the projected move from Paxton to renovated Judah was July 1982; this move was well planned and family members were informed of the move several months in advance. The groups first meeting/event at Judah was a BBQ August 29, 1982.]

I firmly believe that the closure of Judah is not in the best interest of all residents involved and hope the closure will be reconsidered; at least set the date of closure past the holidays.

Sincerely,
Sue A. Donaldson
cc PHA board; JUFSG

Thursday, August 23, 2012

PHA President's message (video)

Earlier this month PHA President Kathleen Miller posted a statement about recent reports of abuse at Sonoma Developmental Center. (see: PHA President's statement on reports of abuse at SDC, Aug. 3, 2012.) Since then, news coverage of incidents of lapses in care at SDC and the management of the state's developmental centers has continued.

Kathleen has prepared the following video message to address questions and concerns over the most recent coverage:


Questions on Abuse Case vlog 2b aug '12 from Scott Pearson on Vimeo.

Update on recent licensing survey at Sonoma Developmental Center (video message)

At the end of May an extensive licensing survey began at Sonoma Developmental Center (SDC). PHA President Kathleen Miller touched on it in an earlier video message. (see: Video message from PHA President Kathleen Miller, July 4, 2012, on this blog)

The survey concluded on July 3, and in this video Kathleen updates us on some of the results of the review, along with some comments.


Licensing Questions vlog2a Aug '12 on Vimeo.

Conservator appeals to PHA for help in court case

The Parent Hospital Association was contacted by the sister, and conservator, of a developmentally disabled adult whose behavioral problems have gotten him mired in the legal system. She appealed to PHA for help in getting him the appropriate care and supervision he needed, rather than a prison sentence.

We have posted here in the past on similar cases, which you can read about at the following links:

Ruling spotlights problems for developmentally disabled in CA prisons

Update on developmentally disabled man caught in prison system

In this case we'll let you read Virginia's appeal and story in her own words. This is a letter we received regarding her brother Wilbert:

Wednesday, August 22, 2012

OPS chief latest casualty as developmental center scrutiny continues

Monica Lam/California Watch
The state's Office of Protective Services (OPS), the in-house police department that oversees about 90 officers at California's developmental centers, is looking for a new chief after Corey Smith received a demotion to second-in-command for the force.

David Montoya, police commander at the Porterville Developmental Center, is serving as interim chief, according to the state Department of Developmental Services’ website.


The personnel change is the latest response in Sacramento to a series of reports of lapses in care and management at the state's facilities serving the developmentally disabled.

You can read more on this move at OPS in the California Watch report, Developmental centers seek new police chief, by Ryan Gabrielson (August 16, 2012).

Saturday, August 18, 2012

Sonoma Developmental Center and DC management in the news

There has been another editiorial by David Bolling in the Sonoma Index-Tribune, and NBC Bay Area reported a week ago that lawmakers in Sacramento have ordered an audit of the Office of Protective Services, the in-house police department at the state's developmental centers.

see:
Pull back veil on SDC, David Bolling, Aug. 6, 2012, Sonoma Index-Tribune
Lawmakers Order Audit of Developmental Center Police, Ryan Gabrielson, California Watch, Aug. 9, 2012

PHA will continue to keep our members posted on current events and news about the care of residents at SDC and the support of the developmentally disabled throughout Northern California. Check this blog for updates -- and remember, the next general membership meeting is coming up 10 a.m., Saturday, September 8th, in McDougall on the SDC campus.

Thursday, August 9, 2012

SDC in the news - a recap

Sonoma Developmental Center has been in the news recently after California Report and ABC7 reported on incidents of abuse with a Taser, which occurred last September at the Center. If you haven't already read some of the coverage, we've posted several links below to help you keep up with the story.

You can read PHA President Kathleen Miller's comments here (PHA President's statements on reports of abuse at SDC) and also in one of the articles that ran in the Sonoma Index-Tribune (SDC parent not surprised).

The next general membership meeting is scheduled for 10 a.m., Saturday, Sept. 8, in McDougall hall on the SDC campus. Come with your questions, comments and concerns. If you can't make the meeting, watch for the latest edition of The Eldridge Gazette, or check back here for updates.

Sonoma Index-Tribune:

State says SDC won't close
Sonoma Index-Tribune
Against a background of uncertainty about the future of the Sonoma Developmental Center, and amidst rumors circulating through a parents association and the Sonoma Valley that it may soon close, the recent revelation that a dozen severely disabled patients at SDC... 

SDC parent not surprised
Sonoma Index-Tribune
When California Watch broke the story July 31 that a caregiver at the Sonoma Developmental Center named Archie Millora had been accused of abusing a dozen patients with a Taser stun gun, Kathleen Miller was not surprised. She had known about the case for months. ...


Shocking abuse at SDC
Sonoma Index-Tribune editorial
California has approximately 1,700 developmentally disabled patients housed in five campus centers with a combined annual budget of $550 million. That translates into about $320,000 per-patient, per-year – a staggering sum. Something under 550 of those patients are currently housed at the Sonoma Developmental Center…

No charges in SDC Taser assault
Sonoma Index-Tribune
Someone using a stun gun like a cattle prod assaulted a dozen patients at the Sonoma Developmental Center last fall, inflicting painful…

Santa Rosa Press Democrat:

Probe of patient abuse at Sonoma Developmental Center raises questions
Santa Rosa Press Democrat
Someone using a stun gun like a cattle prod assaulted a dozen patients last fall at the Sonoma Developmental Center…

State attorney general urged to investigate Sonoma Developmental Center
Santa Rosa Press Democrat
Advocates for the disabled on Thursday urged the state Department of Justice to take over the investigation and prosecution of a former Sonoma Developmental Center employee who is alleged to have used a stun gun on 11 patients. In a letter to Attorney ...

Elsewhere:

Patient stun gun abuse shows flawed care
San Francisco Chronicle
The Sonoma Developmental Center's in-house police force, the Office of Protective Services, had a suspect from the start. An anonymous whistle-blower called a tip line in September and accused Archie Millora, a caregiver at the facility, of abusing several...

Taser Abuse Against Disabled Inquiry Sought
NBC Bay Area
A prominent advocacy group for the disabled and parents of Sonoma Developmental Center patients are calling for an outside investigation into stun gun assaults last fall against a dozen patients at the institution.

Documents uncover questions about attacks on disabled patients
KGO-TV
ABC7 News and media partner California Watch have uncovered a series of Taser gun assaults on severely disabled patients at the Sonoma Developmental Center. A longtime staffer may be responsible for the assaults. Both the executive director ...

Investigating Assaults on Patients in State Care
California Report
In September of last year, the executive director of the Sonoma Developmental Center received a tip on his answering machine that said an assistant psychiatric technician named Archie Millora was using a stun gun on several patients at one ...

Friday, August 3, 2012

PHA President's statement on reports of abuse at SDC

Most of you are aware that a story about an individual who worked at Sonoma Developmental Center and used a taser on some of the residents has recently hit the airways and many of the local papers. (See list of links below.) We are all shocked and saddened by the fact that such a thing can and did happen.

Some families have asked me why PHA did not inform them or even contact the press when this happened. Therefore I wish to clarify that it is not the role of PHA to insure that the press is kept informed but to insure that the families of those residents involved in this or any type of abuse are quickly informed. To my knowledge the staff have always done this and continue to do this today. It is up to family to decide if they wish to share information or deal with issues in a more private way. PHA is here to support families and residents and we respect the decisions they make.

However, it is different entirely when a story about a past incident is coming out in the press and going out live on the airways. This is especially true because there is some perception out there, I have read as much, that families care more about keeping the developmental centers open than they do about what happens to the residents or even their own family members.

I cannot let such a gross misperception stand! It is for that reason, and also to represent the views of PHA and families to the best of my abilities, I granted an interview with Vick Lee at ABC7 news. Even though he did a good job with the interview, time constraints did not allow for the full interview to be on the air. I also spoke with David Bolling, editor of the Sonoma Index-Tribune and I include his article here.

Kathleen Miller, PHA President

SIT editorial coverage: Shocking abuse at SDC, by David Bolling
(published August 2, 2012 in the Sonoma Index-Tribune)

California has approximately 1,700 developmentally disabled patients housed in five campus centers with a combined annual budget of $550 million. 

That translates into about $320,000 per-patient, per-year – a staggering sum.

Something under 550 of those patients are currently housed at the Sonoma Developmental Center at Eldridge, just outside Glen Ellen, in the first, largest and most bucolic such facility created in the state, a scenic and serene country campus that once totaled more than 1,700 acres.
That population has been in steady decline for decades, and it has plummeted in the past 20 years, dropping from close to 1,200 patients in 1994 to 531 patients in June of this year.

As a business model, SDC may not make much sense. As a residential model it is a dream.

But as revealed by Ryan Gabrielson’s shocking story in the California Report this week (see A1), and as chronicled over the years by the Index-Tribune, the dream campus is not immune to nightmares and abuse can occur even among the most vulnerable.

Caring for developmentally disabled patients is demanding work, requiring patience, professional training, compassion and a high staff-to-patient ratio. Not everyone employed in such work is qualified – by temperament or training – to do so. Witness the alleged behavior by the Taser-wielding psyche tech exposed by Gabrielson’s story.

But if you talk to the parents and guardians of some of those 531 SDC patients, three compelling impressions emerge. First, they treasure the opportunity to have their loved-ones housed in such a scenic, secure, generally caring and geographically convenient facility. Second, they are concerned that the quality of care has begun to decline as staff levels drop. And third, they fear that the state has an unspoken agenda to shrink the patient population until the vast, and admittedly expensive, facility is forced to close.

If there is one word most often uttered by parents to describe the communication they receive from the state’s Department of Developmental Services, it is “secretive.” They are told little, they say, about what goes on behind the scenes or within the offices of DDS authorities.

They are, however, informed as a matter of strict policy when their family members are the victims of abusive “incidents.” Parents therefore knew almost immediately when the accused caregiver assaulted 12 SDC patients with a Taser. According to one parent, patient’s families were told about the incidents and were informed that an investigation was underway by an outside agency and that the accused assailant was gone.

But the employee accused of Tasing the severely disabled patients has not been charged with a crime, even though SDC police found a Taser and a loaded Glock handgun under the front seat of his car, a violation of the state’s concealed weapons law.

While an act of aberrant abuse should not be construed as typical behavior by the center’s over-worked staff, the failure of the on-site police force to properly report it is baffling, unconscionable and raises troubling questions about DDS management and leadership, as well as the competency and integrity of the SDC police.

To read other coverage of this issue see:
No charges in SDC Taser assault, Sonoma Index-Tribune, August 2, 2012.
Probe of patient abuse at Sonoma Developmental Center raises questions, Press Democrat, Aug. 1, 2012
Documents uncover questions about attacks on disabled patients, ABC7 News coverage, Aug. 1, 2012.
ABC7 News reports on stun gun incidents at SDC, this blog, August 2, 2012.

Thursday, August 2, 2012

ABC7 News Reports on Stun Gun Incidents at SDC

News of investigations into the stun gun incidents at Sonoma Developmental Center, which apparently occurred there last fall, have been in the news this week with one article published in the Santa Rosa Press Democrat and another report on the ABC7 evening news. There was also an editorial in the Sonoma Index-Tribune (see: Shocking abuse at SDC).

You can read the Press Democrat artice here: Probe of patient abuse at Sonoma Developmental Center raises questions. The ABC7 report aired on Wednesday, August 1 -- the video segment below is taken from their website. PHA President Kathleen Miller had been interviewed for the ABC7 report and a portion of her comments were included in Wednesday's broadcast. She is not, however, included in this video clip.

For more on ABC's coverage, read the online article Documents uncover questions about attacks on disabled patients.



Stay posted for more information as this issue continues to develop.
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